Publications

Downloadable Guidelines

The Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia (HHT), were published in the Annals of Internal Medicine in September 2020. They were developed by an international panel of HHT experts and patients, providing new evidence-based consensus recommendations in six priority topic areas: Epistaxis, Gastrointestinal Bleeding, Anemia & Iron Deficiency, Liver VMs, Pediatric Care, Pregnancy & Delivery.

The 2020 Guidelines add to the First International HHT Guidelines and did not re-assess 2009 Guidelines regarding HHT Diagnosis, Brain VMs and Pulmonary AVMs. The First International HHT Guidelines were published in the Journal of Medical Genetics in 2009.

First HHT International Guidelines